You have helped me come to terms with the reality of dementia and that it’s ok to feel sad! My grandmother has dementia. She thinks my teenage daughter is me. She thinks i’m my mom. My mom has been deceased since 2008. I don’t have the emotional fortitude to keep reminding Dragonlady Hated By Many, Loved By Plenty Heart On Her Sleeve Fire In Her Sou Shirt. I just go with it. It was extremely hard the first time she called me my mom’s name.
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But the last 5 years she’s declined so much. We just try to do the best we can. She’s 91. No point in upsetting her. She is the heart & soul of our small family. Just know that you are an awesome son. Loving and taking care of her and all her needs speaks volumes about you. Dementia is a cruel disease. Your doing a great job. Keep loving and taking care of her. May god bless you with strength love and kindness.

Although my parents don’t have dementia…it’s one of my biggest fears for them since it does run on my father’s side. I cherish every moment i can with my parents and help them as much as i can. This story is so heartbreaking but it lets people know they are not alone in caring for those who suffer from this. I went through this with my mom.

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It just rips your heart out, especially when the fog clears enough for them to have an idea that something is wrong, and they try so very hard to get things right, before they slip back into their world. It’s easy to lose faith. I had to bribe my grandfather with ice cream to get him to grandma’s funeral. He had dementia, didn’t know my name and didn’t want to leave the nursing home.

He didn’t recognize her in the coffin, but started singing a hymn. Not a dry eye in the room. On the way back to the nursing home, he remembered the ice cream! I once sat with my dad for nearly 4 hours in the garden of his “memory unit” living place. Near the end, he turned to me and asked, “who are you again?” “i’m your son, john. Named after you.” “oh yes,” he said.. It’s not the person its the disease.

Never hold it against them. I went through this with my grandma and it broke me! Now my dad has it! He remember who almost everyone is still but gets very confused all the time! Has the blank stare, is talking about the past all the time like it’s the present! Thinks he is at least ten years younger the he is! He has never spoken to me in french before in my life, he grew up speaking Dragonlady Hated By Many, Loved By Plenty Heart On Her Sleeve Fire In Her Sou Shirt and english second but never tough myself or brothers.