God bless you on your journey. My husband was diagnosed with alzheimer’s disease in 2009 and passed away last year on may 14th my birthday i cherished every moment that i had with him in those last years i admire you for what you’re doing to help raise awareness. It’s a hard disease to live through with a Before Maried After Married Shirt. I know my family is going through it with my mother.
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Just remember to focus on the positive, because they are there. The most important thing to remember that as she may not remember you, you will always know who she is. I worked with dementia patients for over 10 years as a nurse. Forget trying to to still be mother & son. If mom thinks you are her cousin or brother, so be it. Mom can longer be a part of your world but you can adapt to still be part of her world. Until the last stages of dementia, you can still have some meaningful relationships.

Don’t focus so much on what she has lost, focus on what she still has. We have been so fortunate. My mother first started being angry and unreasonable with herself, mostly, because she knew she was loosing it. She went past that and is now calm and living in lala land. She has many memory issues but still eventually knows who i am if i talk to her for a while.

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Sometimes she recognizes me right way, other times, not so much. But above all of it, she knows she ought to know who i am and knows she still likes me. Ha. We have been very fortunate, and quite often her sense of humor kicks in. We are enjoying her just the way she is. We are very fortunate. I commend you for recording your mom. I did the same. I lost my mom 2 weeks ago. The footage is raw and at times unbearable but that’s just how difficult it is to watch someone you love go through this.

To all who don’t understand or are in denial of this disease thinking it can’t or won’t affect them, good luck with that. Alzheimer’s, dementia does not care. To see my mom go through this has changed me. Keep recording. You will look back on all the videos one day and realize everything you’ve done is out of love. So far mom has one brother that so far doesn’t have it. My father’s sister died from this awful disease as well. I used to try to re-orient her in the beginning, then i took to doing whatever i could to make her laugh and put a smile on her face.

When she could still go out, i took her to familiar places, such as the restaurant we always ate at before i took her grocery shopping, as she never did get a driver’s license. Everyone there knew me and knew what was going on with mom and they were accepting and absolutely wonderful with her. You have to make the best of what time you have left, before their minds slip completely out of reach. Its a Before Maried After Married Shirt, heart breaking disease!