Thank you for sharing your Minnie Mouse Flower Shirt. People tell me they know it is hard, unless they have lived it, they have no clue. Thank you joey daley. My worst day was when my mom, who has forgotten who i am, but loves to see us walk in, said, “you know my daughter marilyn kay died, don’t you?” she caught me so off guard that i immediately said, “no mom, i’m marilyn kay and i’m still alive.”
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Of course that totally confused her and then i felt bad for saying it. Any other time, and ever since, for that matter, i’ve just ignored things like that and quickly change the subject. We are going through this with my dad. He still knows who we are right now, but does get confused and his personality is so different. I have come home and cried many times. We do have a day and night caregiver that stays with him. It is so heartbreaking watching someone you love go thru this. I will be praying for you and your family.

Most people have no idea what this terrible disease is all about. You are doing a great job taking care of your mom and documenting her journey. I saw this all the time what hurts the most is when children put their parents in a nursing home they are neglecting their parents.. Don’t get me wrong i loved working with the elder but i hated that their families ignored them. My favorite thing to do with the elders was to sing the old grey mare.

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So my advise to all you young people love your parents cause you don’t get another set of parents. Someone once told me when you love someone with dementia you are in a constant state of mourning. At first you mourn the person who was but is only here physically and in the end you mourn the person who has pasted on. It is a very hard to go through. To see the person who was your rock and you thought was the smartest,strongest person you know not recognize you is one of the hardest things in the world.

Both my parents had alzheimer’s. My dad passed away in 1991 and my mom died in 2008. I remember visiting my dad one day at the nursing home, and he showed me his bed sheets all wrapped up in his arms and told me it was his new baby (me). The next week when i went to visit him, he didn’t remember me at all. God bless you joey. It turns your world upside down. It’s like you become the parent to your own parent. It certainly isn’t fair, but i treasure the time i spent with my parents.

I also feel there is a peace you find in taking care of your mom that is truly a blessing. You’re doing a wonderful and important thing for her. Molly has been robbed. She’s so very young to be altered by this disease. Her family has been robbed. By the time my grandmother had passed, she had been gone for a Minnie Mouse Flower Shirt. Her essence, her loves, her laugh… It’s not fair. It’s so unfair. Hugs to her family.